Global Advocates 4 Myalgic Encephalomyelitis . GA4ME
"The failure to agree on firm diagnostic criteria has distorted the data base for epidemiological and other research, thus denying recognition of the unique epidemiological pattern of myalgic encephalomyelitis.”
Dr. A. Melvin Ramsay,
Melvin Ramsay was the recognized authority in ME from 1955 until his death in 1990. However, research has advanced further in the understanding of M.E. since this time (particularly regarding cardiac involvement in ME) and so we acknowledge his historical significance. Very few authors or doctors involved in M.E. today are as accurate in their observations about the illness as Ramsay was, all those years ago. We are indebted to Dr Ramsay, an outstanding infectious disease specialist who devoted much effort to the investigation of our disease from the time that he was confronted with the epidemic at the London hospitals in the 1950’s. Dr Ramsay is the recognized authority in ME, established upon his direct personal involvement in the investigation of the epidemics, research and scientific studies and the examination and treatment of individual patients for over 30 years. Dr. Ramsay’s fame and standing are no accident and we can see that his descriptions of what make this disease unique are accurate and Ramsay’s M.E. is the same disease we have today.
Our effort in this group is to recognize that ME is the diagnosis and
the ICC 2011 is the criteria.
We do not acknowledge ME/CFS, CFS/ME as part of the criteria and we do
not interchange CFS with ME or vice versa.
Under the current WHO ICD Myalgic Encephalomyelitis is listed as G93.3.
In the ICD-10-CM (American), Chronic Fatigue Syndrome is coded as R53.82.
Unlike WHO ICD-10, the US versions of the ICD are quite clear about the relationship between 'CFS' and M.E.:
there is none.
Amy Blum, Medical Classification Specialist at the National Center for Health Statistics has stated:
'ME is not considered a synonymous term for chronic fatigue syndrome in the United States.'
Ms. Blum has also made the following illuminating statement:
'...it is not clinically valid to classify all cases of CFS to code G93.3.
The default will be R53.82 except in those cases where the cause is determined to be of viral origin.'
We hope to protect our interests as a team effort
Please note that we are a new group and will be updating as often as we can.