September 29, 2018

NOTE: a brief personal update

Last year I went to live abroad. I wrote about this change in my February 2017 post PAUSE-REVIEW-REFLECT: towards a bigger picture? [revised version . As of September 2018, I am now UK-based again. While I was away, I continued my work assi...

September 15, 2018

People like to believe it is a quarrel about the name. #PWMEICC ask you to understand it's a question of criteria.

September 5, 2018

I was diagnosed with Myalgic Encephalomyelitis (ME) in 1990 & retired from my career in teaching, a Deputy Head of a high school in the UK, in 2000.  Two years later I moved to Ireland to renovate a derelict house & enjoy my passion for dogs & horses.

In 2003 I...

August 25, 2018

Hello everyone, this is an important but lengthy post, the last post we will be making on MErryn’s Legacy, so please bear with us. For any press or ME charity enquiries, please find our final statement as a family about Merryn in the later parts of the post. Feel free...

August 21, 2018

Tom editor@whippletom,

Tom Whipple joined The Times in 2006. He writes science news and features across the paper. In the course of his duties he has seen inside both the world’s hottest sauna and the world’s most irradiated nature reserve....

August 16, 2018

This stem cell treatment is a reset of the immune system. The stem cells will repair all damage that the body has sustained in recent years. 

"I always thought that I would become a psychologist, singer or musical star. And if that would not work, I also saw a writer or...

August 2, 2018

Please sign & share. See below for links to English, French, Dutch, Spanish and German translations.

We are international medical practitioners and researchers in the field of Myalgic Encephalomyelitis (ME), ME advocates, patients and their supporters. We are located in...

Note from GAME

Lydia Neilson is a Founding Member of Canada's National ME FM Action Netowrk.  Lydia was responsible for organizing the details which enabled

Dr B Carruthers et al, to write the Canadian Criteria Consensus better known as the CCC 2003.  Lydia has given 25...

July 2, 2018

Karina Hansen is a severely ill Danish patient who was forcibly taken from her home on Feb 12th. – update May 9th. 2013

Severely-ill ME patient held in hospital against her will. Karina Hansen, 24, was forcibly removed from home almost 3 months ago and committed to a ho...

June 25, 2018


PUBLIC PETITION for Charity Commission (anonymous option):

I will send this direct to Act...

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