ME - The Shocking Disease
Global Advocates 4 Myalgic Encephalomyelitis are strolling through history for May 12th with The Hummingbird Foundation Copyright © Jodi...
Misdiagnosis on a grand scale?
Around 190,000 people have a diagnosis of MECFS in the UK, and there are approximately 9,300 newly diagnosed cases each year. Yet, how...
Myalgic Encephalomyelitis Unknown Cause, No Cure, No Hope
Lizzie Mooney is 12 years old. She is tall for her age with long blond hair. She likes to wear Chicago Bears pajama bottoms and a hoodie....
Fatigue experts start their own 'fatigue colloboration'
Frank Twisk: https://www.facebook.com/frank.twisk/posts/10213043404148980?hc_location=ufi The International Collaborative on Fatigue...
Changing the narrative #1: exploring a new approach to strategic communications in the ME community
The history of ME remains one of the worst examples of unacknowledged institutional abuse in modern times. Introduction I started writing...
Children Isolated & Tube Fed in Norway
ME epidemic in Norway: Children isolated and tube fed Published December 15, 2018 at 18:02 Karine path Fjeld and My Haug...
Don't Adopt the IOM SEID
DO NOT ADOPT THE IOM CRITERIA !! https://carersfight.blogspot.com/.../do-not-adopt-iom... We do not understand why anyone in the UK...
SEID Classification Usurping ME Must Be Stopped
It has come to MEadvocacy’s attention that a meeting for US ICD-10-CM coding by the Coordination and Maintenance committee took place on...
Karina Hansen news + a battle with NICE (the UK’s National Institute for Health and Care Excellence)
NOTE: a brief personal update Last year I went to live abroad. I wrote about this change in my February 2017 post PAUSE-REVIEW-REFLECT:...
PWME ICC
People like to believe it is a quarrel about the name. #PWMEICC ask you to understand it's a question of criteria....